Planning

Friday, March 20, 2026

Time Event (+)
09:00 - 09:10 Opening - Isabelle Perseil, Lab' Innov', SCTN (Digital Transformation Office), INSERM  
09:10 - 10:30 SESSION Introduction - Chairman Hugues Berry, Head of Inserm's Office for AI & Digital Sciences - Head of Inria Project-Team AIstroSight  
09:10 - 09:30 EHDS in France - Stéphanie Pitre-Champagnat, Chargée de Mission Sciences Numériques & Technologies Émergentes en Santé Service de la Stratégie de la Recherche et de l’Innovation  
09:30 - 09:50 Domain ontologies and metadata ontologies for health - Jean Charlet, AP-HP, LIMICS, INSERM  
09:50 - 10:10 Sharing health data or data related to health: issues, challenges, and approaches - Jacques Van Helden, AMU, Co-directeur de l'Institut Français de Bioinformatique (IFB)  
10:30 - 11:50 SESSION Frameworks - Chairman Enrique Bernal-Delgado, EOSC Director, Aragonese Institute of Health Sciences  
10:30 - 10:50 EOSC Interoperability Framework: An Overview - Esteban Gonzales Guardia, Universidad Politécnica de Madrid  
10:50 - 11:10 CDIF, the Cross-Domain Interoperability Framework - Simon Hodson, Executive Director at CODATA  
11:10 - 12:00 Health Data Journeys and Interoperability Case Studies from EOSC Association’s Health Data Task Force - Wolmar Nyberg Âkerström, NBIS, Uppsala University  
11:50 - 12:50 SESSION EOSC-Life outputs - Isabelle Perseil, Inserm, EOSC-Life WP6 co-leader  
11:50 - 12:10 Navigating the FAIR Research Data Life Cycle with FAIRsharing - Allyson Lister, Oxford, e-Research Center  
12:10 - 12:30 DCAT2 - Marco Roos, Leiden University  
12:50 - 13:30 Lunch  
13:30 - 14:00 ERDERA (European Rare Diseases Research Alliance) : "Virtual Plateform", data models and FAIR datapoints - Marc Hanauer, Chief Technology Officer (CTO) Orphanet, Deputy Director, INSERM  
13:30 - 16:30 SESSION Données patient - Chairman David Salgado, IFB, INSERM  
14:00 - 14:20 Building a learning healthcare system: the example of rare diseases - Anita Burgun, AP-HP, Institut Imagine, Université Paris Cité  
14:20 - 14:40 Scientific exploitation of “real-life” data: “From research hypothesis to Data Paper” - Christel Daniel, AP-HP, LIMICS, INSERM  
15:00 - 15:30 Semantic Beacons: a framework to support federated querying over genomic variants and public Knowledge Graph - Alban Gaignard, Institut du Thorax, CNRS  
15:30 - 16:00 Interoperability of cohorts data and metadata - Gregoire Rey, Directeur de l'Infrastructure nationale France Cohortes, INSERM  
16:00 - 16:30 The EHDS - opportunities and challenges for multinational / cross-border clinical research. - Jacques Demotes, director general of the European Clinical Research Infrastructure Network  
16:30 - 17:00 Panel - All speakers  
  
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