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20-20 Mar 2026 PARIS (France)
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Keynote speakersStéphanie Pitre-Champagnat, DGRI, CNRS
Project Manager for Digital Sciences & Emerging Technologies in Health, Research and Innovation Strategy Department (DGRI/SSRI) A CNRS researcher with a HDR qualification in quantitative imaging and biomarkers, and 20 years of expertise in physics and instrumentation for healthcare, Stéphanie has led research projects from the initial concept through to clinical trials. At the same time, Stéphanie has helped shape research ecosystems at the university and national levels by building bridges between scientific and medical communities. Her current role within the DGRI/SSRI is to lead and support the strategy for health data, artificial intelligence, and new technologies with the aim of promoting research and helping to accelerate innovation in the health sector. Jean Charlet, AP-HP, LIMICS, INSERM
Jean Charlet is a lecturer and researcher in computer science; he is a graduate of the École Centrale de Paris and holds a PhD in computer science, which he obtained from the University of Paris 6 in 1989. He is a full-time researcher at Assistance Publique–Hôpitaux de Paris and works at the LIMICS laboratory (Laboratory of Medical Informatics and Knowledge Engineering in e-Health), a joint unit of Inserm, Sorbonne University and Sorbonne Paris Nord University specialising in health informatics. Within the AP-HP, he works as a project manager and researcher in AI applied to healthcare, based at the Cordeliers campus in Paris. His work focuses primarily on knowledge engineering for e-health, biomedical terminologies and ontologies, semantic electronic health records, semantic mediation and integration, as well as clinical data warehouses and the quality of health information. He is particularly interested in combining symbolic methods (ontologies, knowledge representation) with machine learning techniques to develop systems for clinical decision support, public health surveillance and large-scale analysis of health data. Jean Charlet is the author and co-author of numerous articles in international journals and conference proceedings on medical informatics and knowledge engineering, and is a regular speaker on topics such as ‘AI and healthcare’, ‘representation of medical knowledge’ and ‘NLP for health data’. He contributes to the development of the Paris region’s medical informatics and e-health community through his involvement in the LIMICS laboratory and various academic and institutional networks. Jacques Van Helden, Professor of Bioinformatics, Aix-Marseille Université, and Deputy Director of the Institut Français de Bioinformatique (IFB, ELIXIR-France)
Jacques van Helden is a Professor of Bioinformatics at Aix-Marseille University (AMU), where he develops statistical and computational approaches for the analysis of genome regulation and biomolecular networks. His research focuses in particular on the design and implementation of methods and software for the analysis of regulatory sequences, as well as metabolic and regulatory networks. Since 2017, he has been Deputy Director and Scientific Coordinator of the French Institute of Bioinformatics (IFB / ELIXIR-France), a national research infrastructure that brings together French bioinformatics platforms and provides computing and storage resources, software, standards, and training to support life sciences research. His teaching activities cover bioinformatics, biostatistics, genomics, sequence analysis, biomolecular networks, and best practices for reproducible science. Esteban Gonzales Guardia, Universidad Politécnica de Madrid
Esteban González Guardia is a researcher at the Universidad Politécnica de Madrid (UPM) and an active member of the EOSC Association, where he is part of the Task Force on the technical and semantic interoperability of the European Open Science Cloud (EOSC). An expert in scientific data interoperability, he is involved in major projects such as FAIR-IMPACT and WorldFAIR, where he will moderate sessions on cross-domain interoperability use cases at the EOSC Symposium 2023. His work focuses on the FAIR principles (Findable, Accessible, Interoperable, Reusable), multi-domain interoperability frameworks and the integration of artificial intelligence to facilitate data exchange between scientific disciplines within the EOSC. He contributes to the practical implementation of the EOSC Interoperability Framework, notably through case studies in ocean sciences, geochemistry and biodiversity (LifeWatch). Recognised at European level, he collaborates with initiatives such as EOSC Future and promotes a ‘FAIR data web and interoperable services’ to accelerate interdisciplinary research and the reuse of public research data. Simon Hodson, CODATA
Simon Hodson (he / him) has been Executive Director of CODATA since August 2013. Simon is an expert on data policy issues and research data management. Most recently, he was coordinator of the groundbreaking WorldFAIR project, which is now being extended as an international collaborative initiative, WorldFAIR+, to advance the development and implementation of the Cross-Domain Interoperability Framework (CDIF). Simon has contributed to a number of landmark reports and policy documents: he chaired the European Commission’s Expert Group on FAIR Data which produced the Turning FAIR into Reality report. He was also vice-chair of the UNESCO Open Science Advisory Committee, with an influential role in drafting the UNESCO Recommendation on Open Science, which was adopted in November 2021. Previously he contributed to influential reports on Current Best Practice for Research Data Management Policies, to the Science International Accord on Open Data in a Big Data World, and to the OECD Global Science Forum and CODATA Report on Sustainable Business Models for Research Data Repositories. Simon also contributes activity to the work of the CODATA Data Policy Committee and to the UNESCO-CODATA Working Group on Data Policy in Times of Crisis. Wolmar Nyberg Åkerstöm, NBIS, Uppsala University
He works with data management for the bioinformatics platform at the Science for Life Laboratory (SciLifeLab) in Sweden; with developing shared frameworks for implementing the FAIR principles and brokering contributions to deposition databases in ELIXIR; and with creating synergies across initiatives in the European Open Science Cloud (EOSC), the European Health Data Space (EHDS), the Research Data Alliance (RDA), and the Global Alliance for Genomics and Health (GA4GH). Allyson Lister, University of Oxford, e-Research Center
Allyson Lister is the FAIRsharing Content and Community Lead at the University of Oxford. With a background in computational biology, standards development and FAIR data practices, she leads the curation and community outreach for FAIRsharing’s global registry of standards, databases and policies. Allyson is an active contributor to the Research Data Alliance (RDA), where she co-chairs two working groups focused on enabling FAIR in the context of research standards and repositories across all disciplines. Marco Roos, Leiden University
Marco Roos is an associate professor and head of the Biosemantics group at Leiden University Medical Center (LUMC), within the Department of Human Genetics. A pioneer of the FAIR principles (Findable, Accessible, Interoperable, Reusable) for scientific data management, of which his group is a co-founder alongside Professor Barend Mons, he specialises in computational knowledge discovery and technologies for translational research into rare and genetic diseases. His work focuses on bioinformatics, e-science, knowledge graphs, text mining and reproducible workflows for the integration of heterogeneous data in biology and medicine. As co-leader of the ‘Data readiness’ Work Package of the European Rare Disease Research Association (ERDERA), he has contributed to over 26,000 citations, notably on FAIR principles, nanopublications and rare disease registries. Trained in bioinformatics at the University of Amsterdam (2003–2006), he has led the Biosemantics group since 2009, developing infrastructures for big data analysis and rare disease research at the LUMC. Marc Hanauer, Orphanet, INSERM
Marc Hanauer has been a research engineer at Inserm since 2004 and is Chief Technology Officer (CTO) of Orphanet (Inserm US14), the leading international portal on rare diseases and orphan drugs. As Deputy Director of Orphanet since 2017, he leads the platform’s technological innovation strategy, overseeing the design, development and maintenance of databases and digital services for patients, clinicians and researchers. Based in Paris (96 Rue Didot, 75014), he oversees the technical aspects of producing structured data on over 6,000 rare diseases, including classifications, diagnoses, treatments and specialist expertise, available in 40 languages. A graduate of Université Paris Cité, he manages technical recruitment (Python developers, software engineering) and oversees the development of IT infrastructure to meet the growing needs of digital health and open data. His expertise covers the architecture of information systems specialising in rare diseases, the integration of heterogeneous data and the promotion of interoperable standards at European level. Anita Burgun, AP-HP, Institut Imagine, Université Paris Cité
Anita Burgun is a professor of biomedical informatics and a professor of medical informatics at Paris Cité University (formerly Paris Descartes University), and a clinical professor within the AP-HP. She heads the Department of Biomedical Informatics at the Georges-Pompidou European Hospital and the Necker–Enfants malades Hospital (AP-HP), where she conducts translational research in digital health. She is also director of the ‘Information Sciences and Personalised Medicine’ laboratory (Unit 1138, Cordeliers Research Centre, Inserm / Université Paris Cité), which focuses on the integration of clinical and omics data and precision medicine. A doctor (MD) and holder of a PhD, she is a fellow at the PRAIRIE Institute, where she conducts research into artificial intelligence applied to medical decision-making. Her research topics include the representation of medical knowledge, biomedical ontologies and terminologies, electronic health records, natural language processing of clinical texts, patient similarity, and decision support systems for rare diseases and personalised medicine. She contributes to projects at AP-HP focusing on the integration of genomic and phenotypic data via health data warehouses and the BNDMR, particularly to improve the diagnosis and management of rare diseases. Christel Daniel, AP-HP, LIMICS, INSERM
Christel Daniel is a pathologist (MD) with a PhD in biomedical computing; she is a senior lecturer and hospital practitioner at the AP-HP (Paris Descartes University until 2012). She headed the Data Expertise and Research Department within the Innovation and Data Division of the AP-HP’s Digital Systems Directorate (DSN) from 2012 to 2023, and was co-head of the ‘Health Data Warehouses and Clinical Research Informatics’ research area at LIMICS (UMR_S 1142 Inserm). She currently works as a medical information specialist at the Pitié-Salpêtrière – Charles Foix University Hospitals (AP-HP) and is head of the Data Science team within the same institution. Her work focuses on health information systems, interoperability, health data warehouses (notably the EDS-APHP platform), clinical terminologies and clinical research informatics. A recognised expert in the reuse of real-world health data (real-world evidence), she has contributed to major publications on electronic health records, clinical research using data warehouses and the integration of AI in a hospital setting, with over 4,000 citations (h-index 34). She regularly speaks on the quality of health data and standards for translational research at AP-HP. Julien Huyard, UNICANCER
Julien Huyard is a data steward and data manager specializing in Real-World Data (RWD) at UNICANCER, where he has been working since November 2022 on standardizing data collected through clinical and observational studies. He previously held the positions of Data Management Hub Coordinator (January–October 2022) and RWD Data Manager (August–December 2021) within the same organization, with expertise in automated extraction pipelines, quality control (SAS, SQL), and documentation (data management plan, data validation plan). With a degree in biostatistics (Paris Diderot University, 2017) and experience in laboratory techniques (Institut Pasteur, 2016), he helps define the functional and technical specifications of eCRF systems in collaboration with the development and validation teams. His expertise covers international data standardization, the implementation of standards, and the promotion of new standards when necessary, in support of cancer research within the network of Cancer Control Centers (CLCC). Alban Gaignard, Institut du Thorax, CNRS
Alban Gaignard is a CNRS research engineer at the Institut du Thorax (UMR 1087 CNRS / Inserm, Nantes), where he has been working at the BiRD bioinformatics platform since 2017. He actively contributes to the French Institute of Bioinformatics (IFB / ELIXIR-France) by co-leading the working groups on interoperability and health, as well as to the European ELIXIR infrastructure for bioinformatics. He holds a Ph.D. in Computer Science from the University of Nice Sophia Antipolis (2010) and has expertise in knowledge graphs, distributed systems, scientific workflows, and data traceability in the life sciences. His research focuses on the integration and sharing of heterogeneous biomedical data, notably through national projects such as PEPR Santé Numérique (ShareFAIR, Neurovasc), PPR ABRomics, and ANR Safe-KG. Previously a project engineer at the Nantes University Hospital (2014–2017) and at the CNRS in Nice (2006–2014), he developed digital infrastructures for precision medicine, medical imaging, and big data analysis in neuroimaging and e-sciences. He speaks at international conferences (HealthGrid, CCGrid) and leads training courses in bioinformatics. Grégoire Rey, France Cohortes, INSERM
Grégoire Rey is a statistician and epidemiologist at Inserm, specializing in the analysis of medical causes of death and socioeconomic inequalities in mortality. He directed Inserm’s CépiDc (Center for Epidemiology on Medical Causes of Death) from 2013 to 2022, where he developed methods in biostatistics, artificial intelligence, and open data to improve the production and reuse of mortality data. Since 2021, he has led the France Cohortes national research infrastructure, funded by the Investments for the Future Program, which supports public health cohorts by providing a secure platform for the collection, processing, and utilization of longitudinal data in accordance with FAIR principles. He holds a Ph.D. in public health (Université Paris-Sud, 2007) on heatwave-related mortality and has studied the links between mortality, summer temperatures, socioeconomic status, and quality of care. Author of numerous publications (over 8,900 citations), he promotes open science and the use of big data for disease prevention and the improvement of health policies. Jacques Demotes, ECRIN
Jacques Demotes is a neurologist (MD-PhD) and professor of cell biology, and former director of an Inserm-CHU clinical research center in Bordeaux (2000–2006). He founded the European Clinical Research Infrastructure Network (ECRIN) in 2004 and has served as its Executive Director ever since, leading this ESFRI infrastructure (ECRIN-ERIC) that supports multinational academic clinical trials in Europe. An advisor to the Department of Biology and Health Research at the French Ministry of Higher Education and Research since 2005, he chaired the working group that drafted the OECD Council Recommendation on the Governance of Clinical Trials. As head of ECRIN (based in Paris), he coordinates services for sponsors of transnational studies, from scientific preparation to operational implementation, facilitating access to European patients and expertise through national networks. His initiatives have shaped European clinical research, notably through FP6/FP7 projects, by promoting a single sponsor for multinational studies and centralized scientific review. He regularly speaks on the optimization of clinical research infrastructure and the European integration of healthcare systems. |
